• Manas Ranjan Takri
• Ajeet Jaiswal

Background: Sickle cell disorders are the most common single genomic disorder among people all over the world. According to the World Health Organization, 5% of the world's population has genetic abnormalities, with sickle cell disease accounting for 1-44 percentage of the population in India. Sickle cell disease (SCD) is noted for its painful crises, which usually require hospitalization. Organ failures, leg ulcers, priapism, and vision-related issues like retinopathy among other things, are common among SCD patients. Objective: To elucidate the factors those contribute to people’s ignorance of SCD and the consequences of it among SCD patients and their family members. The impacts of culture and belief systems on health care practices of SCD patients. Area and people: The study was conducted in the five villages of Nandahandi Block and Nabarangpur Block of Nabarangpur District, Odisha, India. The study population was heterogeneous in nature includes General (UR), Scheduled Caste (SC) and Other Backward Caste (OBC). All the participants belonged to Christian and Hindu community. Methods and Material: This is a cross-sectional study. The study is an interview based on 45 respondents. The research tools were Household survey and research schedule. The interview schedule included the self-prepared questions according to the objectives of the study. SPSS and Microsoft Excel software were used for statistical analysis Results: Unawareness on SCD has been increasing the ambiguity of SCD patients and social problems are found to be common among them. Conclusions: The social problems of SCD patients are proportional to the unawareness of the common people. SCD can be preventable by changing public purviews with the help of proper medical guidance.

Sickle Cell Disease (SCD), awareness, health care practice

"Knowledge, Attitude, and Health Care Practices of Sickle Cell Patients", International Journal of Emerging Technologies and Innovative Research (www.jetir.org), ISSN:2349-5162, Vol.10, Issue 1, page no.e122-e127, January-2023, Available :http://www.jetir.org/papers/JETIR2301426.pdf

"Knowledge, Attitude, and Health Care Practices of Sickle Cell Patients", International Journal of Emerging Technologies and Innovative Research (www.jetir.org | UGC and issn Approved), ISSN:2349-5162, Vol.10, Issue 1, page no. ppe122-e127, January-2023, Available at : http://www.jetir.org/papers/JETIR2301426.pdf